Rep. Hank Johnson: I Have Hepatitis C

December 8, 2009 by peachstatepam

Rep. Hank Johnson: I Have Hepatitis C

*”I’m going to be a public figure who takes the sigma away from having the virus,” he said.*
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Rep. Hank Johnson: I Have Hepatitis C

Hepatitis C Can Lead To Cancer, Liver Failure

ATLANTA — Rep. Hank Johnson, D-Ga., revealed Monday that he has hepatitis C, a serious liver disease that can lead to fatal complications such as cancer or liver failure.

In recent months, Johnson, 55, has appeared thin and frail. The two-term Atlanta-area congressman said in a statement that he has been undergoing rigorous treatment to eradicate the disease, which was first diagnosed in 1998. He said the treatment is going well and that he has been free of the hepatitis C virus for almost a year.

Johnson said he doesn’t know how he contracted the virus, which is spread through contact with infected blood. He said he plans to use his public profile to raise awareness of the disease, which infects some 4 million Americans.

http://www.cbsatlanta.com/news/21890634/detail.html

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Rep. Hank Johnson suffering from Hepatitis C

By Michael O’Brien – 12/07/09 06:32 PM ET

Rep. Hank Johnson (D-Ga.) announced Monday that he is suffering from Hepatitis C.

Johnson, a second-term congressman representing metropolitan Atlanta, said he’s been suffering from the incurable disease affecting the liver for over a decade.

Johnson disclosed his disease in an interview with the Atlanta Journal-Constitution on Monday, and said that while he was declared free of the disease earlier this year, he had sustained liver damage and other health issues, for which he his currently seeking treatment.

The congressman was given a 20-year prognosis on life when he was diagnosed with the disease in 1998, with his final goal in life to become a congressman — which he achieved in 2006 when he bested former Rep. Cynthia McKinney (D-Ga.).

Johnson will also seek reelection in 2010, according to the AJC:

Up for reelection in November 2010, Johnson said he is planning to begin campaigning for office again, in earnest, when he’s done with his latest round of treatment in February. At least two Republican challengers have said they’ll run for his seat.

The Georgia Democrat said he had not engaged in risky behavior (such as intravenous drug use) to contract the disease, and that his goal now would be to campaign against the stigma associated with Hepatitis C.

“I’m going to be a public figure who takes the sigma away from having the virus,” he said.

http://thehill.com/blogs/blog-briefing-room/news/71009-rep-hank-johnson-suffering-from-hepatitis-c

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Rep. Hank Johnson battling hepatitis C

December 7, 2009 at 4:10 pm by Patrick Saunders in News

After shedding 30 pounds in the last year and suffering noticeably from slowed speech, confusion and fatigue, Rep. Hank Johnson revealed an 11-year-old secret today: he has been battling hepatitis C.

From the AJC:

He was officially declared free of the virus in January, but it has ravaged his liver, damaged his thyroid and caused other health problems, including depression, for which he’s also being treated. To keep the disease in remission, Johnson is going through an experimental treatment that he said has been the worst part so far.

“I am weaker than I ever have been,” Johnson, 55, said in his Capitol Hill office.

Johnson told the AJC that when his doctor gave him the initial diagnosis in 1998 and told him he had 20 years to live, he got his financial affairs in order and got to work on some life goals. That included winning a seat on the Dekalb County Commission before unseating Cynthia McKinney in the 4th congressional district in 2006.

He told the AJC that doctors have since told him there are “no limitations on how much longer he’ll live.”

Johnson says he has no plans to step down and will run for re-election next November, but won’t start campaigning until after he is done with his latest round of treatment in February.

http://blogs.creativeloafing.com/freshloaf/2009/12/07/rep-hank-johnson-has-hepatitis-c/

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FOR IMMEDIATE RELEASE

December 7, 2009

NVHR Offers Congressman Hank Johnson Support & Encouragement As He Battles Chronic Hepatitis C Virus

Washington, DC-With today’s forthright and valiant announcement by Congressman Hank Johnson (D-Ga.) that he is undergoing treatment for chronic hepatitis C virus, the National Viral Hepatitis Roundtable (NVHR) wishes to offer Congressman Johnson, Mrs. Johnson, and his entire family and staff our unwavering support as he works towards a cure.

Congressman Hank Johnson is believed to be the first sitting Member of Congress to acknowledge he is afflicted with chronic hepatitis C virus.

The NVHR is a coalition of more than 150 public, private, and voluntary organizations dedicated to reducing the incidence of infection, morbidity, and mortality from viral hepatitis in the US through strategic planning, leadership, coordination, advocacy, and research. http://www.nvhr.org/

“NVHR and the entire viral hepatitis community offer Congressman Johnson our support and encouragement as he battles chronic hepatitis C virus,” said NVHR Chair Lorren Sandt. “In choosing to disclose his condition, Congressman Johnson is helping to propel chronic viral hepatitis to the forefront of our nation’s public-health agenda. We are hopeful that Congressman Johnson’s announcement will help spur greater awareness about the need for increased prevention, detection, and treatment of chronic viral hepatitis B and C.”

In light of this announcement, the NVHR encourages the American people to use it as an opportunity to learn more about the need to address the urgent public health crisis of chronic viral hepatitis B and C infection and to recognize that viral hepatitis is treatable. Hepatitis B is well managed with medications and more than 50 percent of hepatitis C patients are cured with anti-viral therapies. Bipartisan legislation was recently introduced in Congress by Representative Mike Honda (D-Calif.) and Charles Dent (R-Pa.) that would increase federal funding for comprehensive prevention, research, and medical management referral programs for chronic viral hepatitis B and C infection.

An estimated 5.4 million Americans – roughly 1 in 50 – are afflicted with chronic viral hepatitis infection and most don’t even know it. Left undetected and untreated, chronic hepatitis B and C can lead to cirrhosis, liver cancer, or liver failure. While African Americans and Asian Americans are disproportionately afflicted with chronic viral hepatitis infection, the diseases infect all walks of life in American society.

In January 2010, the Institute of Medicine (IoM) is expected to release a report on viral hepatitis in the United States that outlines strategies for reducing the incidence of viral hepatitis infection and to mitigate complications in those individuals with chronic infections.

Phil Blando, pblando@abmpartnersllc.com , 202-258-4978

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December 7, 2009 404-593-9126

Rep. Johnson’s statement on hepatitis C

LITHONIA, GA – Over the past year, I have been on a robust course of treatment for hepatitis C (HCV), a virus that affects more than four million Americans. I am pleased to announce that my therapy is progressing well. My physician is encouraged by my response to treatment and expects complete success eradicating the virus.

I hope that my disclosure will provide others suffering from HCV with confidence to speak out and educate the community about this illness. Through clinical trials and medical research, we must always seek new, more effective treatments.

I plan to use my position as a public figure to raise awareness of the consequences of this infection and let others fighting hepatitis know that it is possible to succeed and excel while battling this disease.

The causes of this disease are many, but in the end it does not matter how someone contracted the virus. Like so many millions of others, I was infected many years without ever knowing how I contracted it.

In fact, more than half the people who have hepatitis C don’t know how or when they contracted it. And many are fearful of the treatment regimen that impacts your life in unusual ways. Having come through a long course of treatment, I want to send a strong message that a cure is possible but you must be tested and treated.

I will be working with the National Viral Hepatitis Roundtable (NVHR) to help educate my colleagues and the public to learn more about this largely misunderstood disease. It is treatable, but we must devote the will and resources it deserves in light of the urgent need.

Though this infection has caused me some discomfort and frustration, it has in no way affected my ability to legislate and serve my constituents. My record of attendance at votes and in committee meetings is outstanding. I have passed three major bills in this year alone. As Chairman of the Judiciary Subcommittee on Courts and Competition Policy, I have led an active and effective committee. And as Southeast Regional Whip in the House leadership I played a significant role in rallying my colleagues support for historic health reform.

Today, I also announce that I will co-sponsor legislation offered by several of my colleagues in October, 2009 – H.R. 3974 – which would establish, promote, and support a comprehensive prevention, education, research and medical referral program for viral hepatitis infection.

It is a testament to the 111th Congress that we have men and women willing to stand up for average Americans and their families who have been impacted by hepatitis C and related illnesses. It is also gratifying that this is a bi-partisan bill because disease respects no socio-economic status, party or political philosophy.

Rep. Johnson’s physician, Dr. Maria Sjogren of Walter Reed Army Medical Center

Congressman Johnson can be an inspiration to thousands of people who suffer from this illness. He has been a model patient, sticking with his course of treatment even when it was most difficult. His determination shows that people suffering from hepatitis can live normal lives and continue to be productive citizens.

Martha Saly, Director of the National Viral Hepatitis Roundtable (NVHR)

On behalf of the entire chronic viral hepatitis community, we offer Congressman Johnson our support, prayers, and encouragement, said Saly, who was treated for hepatitis C in 1999 and cleared the virus. Congressman Johnson’s announcement shines a much-needed spotlight on a public-health issue that has historically resided in the shadows. We are hopeful that Congressman Johnson’s announcement will help spur greater awareness about the need for increased prevention, detection, and treatment of chronic viral hepatitis B and C.

Live in Florida? World Hepatitis Day on May 19, 2009

May 8, 2009 by peachstatepam

Do you live in Florida? Take part in World Hepatitis Day on May 19, 2009!

World Hepatitis Day 2009 Florida

Get MORE information on Hepatitis at www.aminumber12.org and www.nvhr.org

Short Lifestyle Survey for College Students

July 21, 2008 by peachstatepam
Lifestyles and College Students  (Please pass this forward to any college students that you know)

We need your help! We are inviting college students, ages 18-30, to take a
short online survey about lifestyles and attitudes. The survey is anonymous
and no identifying information is gathered. The results will be used to
develop an educational health-related program for young adults. The online
survey data will go into a secure, encrypted database only accessible to
the research team.

At the end of the survey, you can request a form of proof that you
completed the survey (for class credit if your professor provides extra
credit).


For more information, please contact Dr. von Friederichs-Fitzwater at
marlene.vonfriederichs-fitzwater@ucdmc.ucdavis.edu

Thank you for your assistance in this important project.

Please go to http://www.hcri.com/CollegeSurvey to complete the survey.

Why The World Should Ask ‘Am I Number 12?’

June 2, 2008 by peachstatepam

More than 200 patient groups launch global viral campaignhttp://www.aminumber12.orghttp://www.suis-jelenumero12.orghttp://www.souonumero12.org http://www.sonoioilnumero12.orghttp://www.soyelnumero12.orghttp://www.rakam12.org

Thursday 24 April, 2008 – The World Hepatitis Alliance and over 200 patient groups around the world are asking ‘Am I Number 12?’ (http://www.aminumber12.org) to increase awareness of the shocking statistic that one in 12 people on the planet are living with hepatitis B or hepatitis C and yet the majority of those infected are unaware.

Three weeks ahead of World Hepatitis Day on Monday 19 May, the World Hepatitis Alliance is launching a viral campaign aimed at getting people talking about the fact that approximately 500 million people globally are living with either hepatitis B or C. The World Hepatitis Alliance is asking people to sign-up to http://www.aminumber12.org to show support for the campaign but also to receive valuable information about a disease that kills some 1.5 million people a year.

The ‘Am I Number 12?’ campaign has already kicked off in 55 countries and high-profile campaigns are being coordinated from Sydney to Serbia and from Beijing to Buenos Aires. Charles Gore, President of the World Hepatitis Alliance, said that with 1.5 million people dying every year, chronic viral hepatitis could no longer be ignored. “Through the ‘Am I Number 12?’ campaign and activities around the world on 19 May we aim to put hepatitis B and C firmly on the global healthcare agenda,” Mr Gore said.

In Tallahassee, we will be having our first World Hepatitis Day at the Capital on May 19th from 9am to 1pm. There will be many educational booths on the first floor and in the Courtyard with a press conference on the old Capital steps at 10:30am. The State of Florida Health Department will be actively participating and the CDC will be issuing a statement. We feel this is a very important and critical issue since 1.25 million people are living in the U.S. with Hepatitis B (which is vaccine preventable!) and 4 million in the U.S. have Hepatitis C – but they just don’t know it yet. (There is not a vaccine for Hepatitis C). We urge everyone to Know Their Status and Get Tested for Hepatitis C!

Mr Gore said that, unlike other disease areas, awareness of hepatitis B and C remains inexplicably low: “We believe that, unless awareness improves, we won’t make any progress in reducing the enormous and largely preventable death toll. Hepatitis B and hepatitis C should have the same profile as HIV/AIDS, malaria and TB and should really be up there alongside those diseases in the WHO’s millennium goals.”

Did You Know?

o 500 million people worldwide are currently infected with hepatitis B or C
o This is over 10 times the number infected with HIV/AIDS
o Between them, hepatitis B and C kill 1.5 million people a year
o One in every three people on the planet has been exposed to either or both viruses
o Most of the 500 million infected do not know

World Hepatitis Day
World Hepatitis Day will be observed on Monday 19 May and marks a brand new, entirely patient-led initiative. The day has been launched in response to the concern that chronic viral hepatitis has nowhere near the level of awareness nor the political will to tackle it that is seen in HIV/AIDS, TB and malaria. This is despite the fact that the numbers chronically infected with, and annually killed by, hepatitis B and C viruses are on the same scale. ‘AM I Number 12?’ campaign materials are available in over 40 languages – for logo images, postcards, posters and banner ads please contact the World Hepatitis Alliance at worldhepday@fleishman.com

World Hepatitis Alliance
World Hepatitis Day is being coordinated by the World Hepatitis Alliance, a newly established Non-Governmental Organisation which represents more than 200 hepatitis B and hepatitis C patient groups from around the world. The World Hepatitis Alliance is governed by a representative board of patient groups from seven world regions: Europe, Eastern Mediterranean, North Africa, North America, South America, Australasia & Western Pacific. For more information visit http://www.worldhepatitisalliance.com on Monday 19 May.

Contact Information:
International :
Raquel José
T: +44 (0) 2070896220
E: raquel.jose@worldhepatitisday.org

United StatesPam Langford
T : 850-443-8029
E : figment@nettally.com
http://www.HEALSoftheSouth.org

www.myspace.com/figmento

 

Kelly’s Lot Sheds Light on Hepatitis C in Belgium

June 2, 2008 by peachstatepam

Kelly’s Lot Brings “The Light” to Europe AND SHEDS A LIGHT ON HEPATITIS C

First new STUDIO CD in Eight Years from National Spokesband for HepCAware.org (Los Angeles, CA): After spending almost a decade as National Spokesband for the Hep C Awareness campaign in the U.S., Kelly’s Lot now brings its good works and good music to Europe. The band is on the road in support of the roadhouse rock & blues release “The Light,” their first new studio CD in eight years.

The last show of their trip will be dedicated to raising awareness of hepatitis C. Formed in 1996, Kelly’s Lot, who has toured all over the USA has decided to cross the Atlantic ocean to play in Belgium and France. Honored with the “Best Blues Band” award by Rock City News and named one of the Top 13 bands in the U.S. by Independent Songwriter Magazine, the band is ready to expand it’s reach. For this first trip abroad they decided to trim down to an acoustic trio which includes Kelly Z on vocals, Perry Robertson on guitar and Linda Moss on harmonica. No worries, the trio packs a punch comparable to the full band. Built on a solid Blues/Rock foundation, Kelly’s Lot plays Americana music with a slightly Alternative edge. Having a voice compared to Melissa Etheridge and Janis Joplin but ultimately all her own, Kelly brings emotion, energy and excitement to every performance. Kelly Z recorded her first demo CD, “Kelly’s Lot”, with J. Peter Robinson, former keyboard player for Phil Collins and The J. Geils Band. The next recording “Kelly’s Lot-Live at the Troubadour” was their first of 3 Live CDs which put the band on the map as a band to see live.The band’s first official release, “Test Drive,” was produced by Robertson, bringing in friends like Scott Sanders to mix and Phil Morales to create the enhanced part of the CD and a music video of the band’s remake of Melanie’s “Brand New Key” directed by Catherine Hardwicke (Thirteen, Nativity Story) The next live CD “Get Hip To Hep C”, began the band’s official work with a national campaign to raise awareness about Hepatitis C including Kelly’s founding of HepCAware.org.

Kelly’s Lot has been involved in raising awareness of Hepatitis C since 2000 after lead singer Kelly Z lost a close friend to the virus. Their last 2 CDs were the live acoustic “Trio” and the full band EP, “Come To This.” Their new release “The Light” was recorded at EarCandy Studios, the company responsible for the sound behind Juno, Lars and The Real Girl and Rambo 4.

Los Angeles-based Kelly’s Lot weaves blues and roadhouse rock into a passionate combination. Selections from their diverse selection of original songs, form a dynamic set of sometimes mellow and moody; sometimes raucous and radiant; but always soul-searching lyrics.

May 7th @ L’OUZERI 10pm 32, rue souverain 4000 Liege (Luik), BELGIUM
May 8th @ Heksenketel 9pm Pelgrimsstraat, 22, 2000 Antwerpen, BELGIUM
May 9th @ Bar Belge 9pm-12am av du General Leclercq, 94700 Maisons Alfort, FRANCE
May 10th @ Indigo Studios 8pm 96 rue de la Victoire, 1060 Bruxelles, BELGIUM
May 11th @ BP Cafe 7pm Raising Awareness of Hepatitis C Gemeenteplein, 3, 2640 MORTSEL, BELGIUM
For Interviews, More Information:
Tom Kidd/Pres Pak Public Relations
PrespakPr@earthlink.net
kellyslot@aol.com 310-377-2527
cell 310-433-6734

http://www.einnews.com/pr-news/10172-kelly-s-lot-sheds-a-light-on-hepatitis-c-in-belgium